Chase's feeds are running over 45 minutes now b/c he just didn't tolerate the 30 min feeds too well. But they keep saying it'll happen, it just takes time. His NG feeding tube slipped out of his nose. Knowing Chase, he probably pulled it out somehow. But when we arrived this afternoon they had tried 3 times to put it back in and they were in the process of trying again for the fourth time. Chase was so upset and his little nose was bleeding. I know it's something so minor, but I can't even handle that. What's worse is he can't even cry or scream because of his trach, so he just has this look of silent horror on his face. They ended up having to put the feeding tube back in his mouth, like he had before the trach. I was concerned this would set him back with the suck/swallowing and oral feeds, but they assured me it wouldn't. I was glad when he started sucking on his binkie again.
Chris and I are going to be there tomorrow morning when the team rounds on Chase so we can ask are many questions like what the plan is, why does he keep throwing up, why can't he be weaned off the oxygen, when do they think he'll be discharged, etc. I get frustrated because the doctors don't voluntarily offer us any information or updates unless we specifically seek them out and have our lists of questions ready to ask in 5 minutes or less. I know they're busy and they're taking care of alot of sick babies, but sometimes I wish we weren't treated just like another family and sick baby. I'm sure my emotional state doesn't help these matters. But I'm trying to trust God, trust the doctors and nurses, and be Chase's advocate to make sure nothing gets missed.