Wednesday, July 9, 2008
Chase had a great night last night. But the nurses said he had a rough morning and couldn't get comfortable. He only took about 15 mls from the bottle and threw up a couple times. His oxygenation sats were a little low so they had to give him some extra oxygen. By the time we arrived at lunch time, he was sleeping good and doing much better. We are meeting the the doctors and others tomorrow afternoon. The doctor is encouraging the gastrostomy tube, and possibly a fundoplication, which is where they wrap part of the stomach around the esophagus to keep him from vomiting. We're a little unsure about fundo but okay with the g-tube I think. Chris and I made our list of questions to discuss with everyone, so we'll see. We just want to get him home. Tonight he did great and took the whole bottle.
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6 comments:
Let me tell you about fundoplication. Hayden my oldest which will soon be 11 had the same surgery done. He was 6 months old when they did it. He also would vomite after every bottle. We tried every kind of formula out there. He cried none stop from being hungry then from a belly acke and then he would throw it all back up. It was a visious cycle we went through. Finally after not gaining weight they discovered reflux. With in 2 weeks after having the surgery he was a totally different child. Honestly no more vomiting. He didn't even have spit up. It was truely the best thing we did. He has a huge scar across his stomach but it was worth it. He now has a little trouble vomiting but is able to. Make sure you ask if he will be able to later in life. I know there is different ways that they do it and that was one of our concerns. We all hate to do it but sometimes you just feel better. What all you have been through I know you can handle this. I hope what ever they do helps him because I think it will make a difference in his eating. Good Luck to you and I'm still praying for you all.
Chrissy Wilson
Chase is educating us all! We're excited to know he's nursing and gaining!We're off to Indy to visit Justin and will take you with us through your blog and in our prayers...and check on you when we return!
Still praying for you here in Clinton. Your little Chase must have your strength because he has sure gone through a lot! We sure hope you can all go home soon. What a joy that will be! In Christ, Barbara and David Bowser
It must be difficult to make these decisions.. but know you are guided & go with your hearts.
Our Prayers & Love,
Jim & Vic
Hi Katie,
Mom and Ashley said they saw your mom and grandma in the elevator at St. Luke's when we were there with our son Ethan. If you haven't already found it, March of Dimes has a discussion area for NICU families. I have met a lot of nice people there. My story is called HELLP Syndrome Took My Son. It really helped me to write down what happened. Your blog is awesome. I know a lot of people are reading it and thinking of you guys.
Liana (Kidwiler) Bennett
Katie and Chris - Thanks for sharing your blog link. I have now fully caught up on Chase's story and love reading the progress he has made. I know it's been way too long since we have caught up but know I am thinking of you dearly. I will continue to read your updates and look forward to the day when you get to bring your boy home.
Miss you,
Katharine
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