We took Chase to the Plaza yesterday for lunch and a little shopping :) He loved it and did well for a couple hours before he let us know he was ready to go. He mostly slept, and seems to be pretty comfy in his car seat and stroller. We're getting more and more comfortable taking him out and about. He really seems to like the movement and the fresh air.
We had a visit from a developmental specialist and occupational therapist from First Steps to evaluate Chase last week. We haven't recieved the report from the developmental specialist, but the report from the occupational therapist measured Chase at having a 50% delay in gross and fine motor skills, scoring at 1 month age level. Chase is 2 months based on his adjusted age due to prematurity. So we have alot of work to do, and hopefully these early interventions and working with First Steps help.
We found out that I am a carrier for the X-linked recessive genetic disorder. Since my family is all girls on the female side going back 4 generations, it's difficult to know where the defect began. But basically it means we have a 25% chance of having another boy like Chase. I feel guilty and responsible for passing it on to Chase, even though I know it's nothing I did or anything that I could help. It's just one of those things.
Let your roots grow down into him, and let your lives be built on him. Then your faith will grow strong in the truth you were taught, and you will overflow with thankfulness.
~ Colossians 2:7, NLT
5 comments:
Dear Katie and Chris, We admire you both so much for all that you are doing for your precious boy. Please do not feel guilty about his difficulties. We know that with parents like you, he is a lucky child indeed. You have a lot to teach us all. In Christ, Barbara and David Bowser
Plaza shopping and lunch! You're bringing him up right!!! You continue to be in our thoughts and prayers from WI!
I read your blog daily and am inspired every time. I was thinking the other day about Chase's life and the life you both are now taking on. The purpose some are asking and the answer is life. I believe you have been given a challenge in life that you can handle and will handle. Chase needs parents that are strong enough to do all that is required to take care of him and it is so clear through your daily blogs that you two can do it. I believe their will be so much to come of your life with Chase and so much for everyone to learn from you. Thank you for sharing this intimate time of your life with all of us. It really is insperational. Change is needed in so many areas of life and you guys are going to help make that happen...I can just tell. Continue to enjoy these special moments of life with an infant. They pass so fast as you have heard. You are in our families prayers.
Theresa:)
Dear Sweet Katie and Chris, Chase just couldn't have more loving and attentive parents! I read your blog every day and I admire you both for your strength and faith. Our youngest son, who is now 19, is bipolar. Life has been tough and full of ups and downs, spending time and energy on things that I hadn't intended. I think what God gives us, he wants us to do something with because he knows we can. Since educating myself on mental health, I try to bring awareness to mental health issues in the community and have set up a charity and volunteer program for kids at a local mental health hospital (many are CPS). Everything will come to you over time and with all of your love and intelligence, you not only can love and help Chase, but help many other children and families by your own experiences. God Bless You all 3 Mary R (your Mom's friend)
You guys seem to be doing so well! It is so encouraging to read your blog and get an update on how wonderful Chase's life is right now. You guys are overcoming hardships and knowing that Chase has such great parents makes me believe more and more that God gives us no more than what we can handle! You all are continuously in my prayers and I am so excited to see him so happy! Just keep your head up and know that you guys are doing such a wonderful job with him!!
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